Help 4 Hd Live!

First episode of the "HD Mythbusters" series with Dr. Thomas Bird. We discuss "CAG" in HD.

Physical therapy in HD

Dr. David Reynolds and Dr. Caroline Benn of LoQus23 share what they are doing in regards to HD research. This show was done on Zoom. You can see the recording soon.

Marie Clay and Lauren Holder talk about the holidays with a pandemic going on.

To order Jimmy's book, please visit lulu.com

Please visit www.huntingtonstudygroup.org or www.clinicaltrials.gov for study locations

Telehealth

BJ Viau (view) has been a Huntington's Disease advocate for the past 20 years in multiple roles.  After his mom was diagnosed in the mid-90s his family hosted a  basketball fundraising event for 15 years that raised funds supporting the Huntington's Disease Society America.  His fundraising led him to meet many other young people impacted by HD which led to being a co-founder and 10-year board chairman of the Huntington's Disease Youth Organization, an international non-profit supporting kids, teenagers and young adults impacted by HD.  Professionally, BJ has spent 10+ years in the pharmaceutical space.  Many of those years were at Lundbeck, working with Tetrabenzine, the first FDA approved medicine for chorea associated with HD.  BJ has an MBA from the Kellogg school of management and a passion to help others in the HD community, especially those thinking about or going through the genetic testing and counseling process. 

We talk with Lauren Yaeger about how COVID-19 is impacting the holidays

Dr. Julie Stout and Cory Wasser join us from Australia.

Katrina Hamel and Lauren talk about home health care

Let's Talk about SIGNAL with Christie and Chad.

For more info, visit http://campaignformybrain.co.uk You can purchase "Harry Needs a Hug" here: https://www.amazon.com/Harry-needs-hug-children-Huntingtons/dp/B08FNJK2BN  

Help 4 HD Symposium

Huntington's Disease Alters Human Development in the Fetal Stage

To see the Facebook Live and see the resources I posted: https://www.facebook.com/585948945/videos/10157636988738946 For an amazing resource dealing with assistance for durable medical equipment: https://www.payingforseniorcare.com/durable-medical-equipment/state-assistive-tech  

JHD Tips and Tricks with Michelle

Dr. Stephan is an industry veteran who is considered one of the fathers of the field of precision medicine, having trained with the leadership of the Human Genome Project at the NIH and then going on to lead discovery research at the Translational Genomics Research Institute and serve as professor and chairman of the Department of Human Genetics at the University of Pittsburgh. Stephan has identified the molecular basis of dozens of genetic diseases and published extensively in journals such as Science, the New England Journal of Medicine, Nature Genetics, PNAS and Cell. In parallel, Dr. Stephan has founded or co-founded 14 biotechnology companies and has advised an additional 12 companies. These companies are backed by top-tier investors such as Sequoia Capital, KPCB, Thiel Capital, and Khosla Ventures as well as corporate partners such as Life Technologies, Pfizer, and Mayo Clinic. Dr. Stephan received his Ph.D. from the University of Pittsburgh and his B.S. from Carnegie Mellon University.

Dr. Ratna and Lauren Holder talk about Dr. Ratna's research and inadequate care in the HD community in India "I am a doctor, pursuing clinical care and research in HD for the past 5 years. I met approximately 150 HD patients and about 50 families are in regular consultation with me. This sensitized me to the misery created by HD in various contexts such as social, economic and cultural besides the obvious biological deterioration of the individual. I am committed to the cause of empowering HD affected individuals and families through clinical care, HD centric research and community activities through HDSI. I strongly believe in team work and have been connecting all the HD related people from India and abroad. I am currently serving as the vice chairman of Huntington Disease Society of India. Dr Nikhil Ratna MBBS, PhD (thesis submitted) Vice-chairman, HDSI Associate member, EHDN Member, The International Parkinson and Movement Disorder Society (MDS) "  

Please visit https://www.thetreygrayfoundation.org/about-trey for more information!