Help 4 Hd Live!

TUESDAY, January 21, 2014 - 3:30 pm PST/6:30 pm EST Join us for a 3-part series on gene therapy for Huntington's disease. Our incredible special presenter is Benjamin E. Deverman, Ph.D. from California Institute of Technology who is going to give us some very interesting insight and education about what exactly is gene therapy. What are the goals of this therapy and what genes can be used for gene therapy in HD. What are inhibitory RNAs, ASOs and other therapeutic strategies like trophic factors? We will be learning how gene therapies are going to be delivered. What is AAV and "naked" DNA? We will hear about some encouraging results from clinical trials for other diseases and why they show promise for HD. Tune in for a very educational and informational show.

THURSDAY - January 16, 2014 - 3:30 pm PST/6:30 pm EST It's time for an update from the CREST-E clinical trial with Bonnie Hennig. THE MISSION: To provide patients and families with information about CREST-E. The discussion today will be focused on providing a brief overview of the study allowing for an informal discussion about study participation and providing information about how individuals with HD and their caregivers can participate in clinical trials.  

TUESDAY January 14, 2014  -  3:30 pm PST/6:30 pm EST Jimmy Pollard is back with us to share with us his travels and lectures around the country speaking to our amzaing Huntington's families. He has been lecturing in California, South Dakota, and has plans of meeting our H'Dears in Fargo, ND and many other places. Tune in for a Jimmy Pollard update and lots of fun!

SATURDAY/SABADO, 11 DE ENERO 2014 Help 4 HD International está feliz y orgulloso de estrenar su primer programa de radio en vivo en Español / Inglés que sera transmitido este Sábado, 11 de Enero 2014 a las 9:00 am Tiempo Del Pacifico/11:00 am Tiempo de la Ciudad de México Why is this new program extremely important? Help 4 HD International believes this bilingual program will reach a population of its people in North and South America and globally who will benefit from information and education about Huntington's disease. ¿Por qué es importante este nuevo programa? Help 4 HD International cree que este programa bilingüe llegará a una población de su gente que habita en Norte y Sudamérica y alrededor del mundo que se beneficiará de la información y de la educación brindada sobre la enfermedad de Huntington. Special Guest Veronica Ruiz Moreno from Fundacion Veronica Ruiz in Mexico City will speak about her foundation and the marathons that she runs around the world to bring about awareness of Huntington's

January 7, 2014 - We welcome you to another amazing year of the Ask Dr. Goodman Show. Practical and compassionate advice from an incredible physician treating our loved ones suffering with Huntington's disease in Washington and now reaching patients, families and caregivers, through Help 4 HD Radio, on a global scale. You may find Dr. Goodman at www.hddrugworks.org and as one of Help 4 HD International's Medical Advisors.

This month of December 2013 we are celebrating our HD advocates and this Saturday is no exception. Dr. Scott Guess and his better half, Misdee L. Kornder-Guess, RN are my favorite pharmacists in the world and today you are going to find out why. They founded Pain Management Pharmacy, Inc. in Santa Maria and En Soleil Pharmacy, Inc in Atascadero California. We are going to be talking about what is the new trend in pain management pharmacies and physicians. Not all HD patients have pain, but many do. So, let's talk about how we can help them too.

Welcome to this December 17 show. Help 4 HD Radio has designated the month of December for celebrating our amazing HD advocates. Tonight we are happy to introduce Papa Mike, Raima and The Wilderness Kids as our incredible special guests. Best known as the Wilderness Kids Firewood and Maple Syrup of Saco Maine, the Wilderness Kids are Mike and Raima's grandchildren, Brandon Irving, age 13, and his sisters Elizabeth (11) and Karissa (8) who founded this amazing program in memory of their two uncles Chris and John Irving, who have passed from Huntington's disease. The children’s father, Nicholas, who is the youngest brother of Chris and John, does not have the genetic disease. He was one of the lucky few who did not inherit the mutated gene which causes HD.  Papa Mike and the children sell firewood and maple syrup to help raise money for other families who are struggling to care for loved ones with the disease. We are going to talk about the kids' dream to make a difference in the lives of all HD and JHD famil

Help4HD - The HD View - Celebrating the Advocates: Matt Ward! Join us as we continue to celebrate our amazing international advocates for Huntington's disease.  We are excited to have the amazing "HD Warrior" Matt Ward from Nottingham, United Kingdom joins us tonight!  Matt Ward has decided to share his experiences living with HD via a video diary on YouTube.  His bravery and willingness to share his story is worth celebrating!  We will be honoring Matt tonight for everything he has done to advocate for Huntington's disease! Stay tuned for an awesome show highlighting yet another amazing advocate! 

Tuesday, December 3, 2013 I am so excited about the month of December shows. This is the time of year for giving. We give to our family; to our friends and to others without expecting much in return. Tonight we are going to talk about the spirit of giving with a woman who puts this to practice all year-round. We begin with a story about an extraordinary woman and a remarkable homeless man. Elizabeth kept seeing Dale in the same place at certain times and had recognized him from prior years. She had avoided him thinking he was scary. One day when she was out to dinner with her son, she spotted Dale in a dark storefront sitting on a walker. At first she walked quickly to her car. But, when she looked back at him, she could see his silhouette, so frail and vulnerable, she thought… something was different this night. Tonight Elizabeth is here with us to talk about how she befriended Dale who turns out was suffering from Huntington's disease. She got him off the street and in selfless style she cared for him un

Our incredible special gues this afternoon is Kenneth P. Serbin, Ph.D., professor and chair in the USD College of Arts and Sciences,Department of History, served as vice president, president, and immediate past president of the Brazilian Studies Association (2004-2010).  He also was the co-chair of the Brazil Section of the Latin American Studies Association from 2003-2006. Kenneth Serbin’s mother died of Huntington’s disease in 2006 after a 20-year battle against the disease. Serbin tested positive for HD in 1999. His daughter Bianca tested negative for HD in the womb and is today a healthy 13-year-old eighth grader. Since 1998, Serbin has served as a volunteer advocate for the Huntington’s Disease Society of America (HDSA). Adopting the pseudonym “Gene Veritas,” in January 2005 he started the blog “At Risk for Huntington’s Disease” (www.curehd.blogspot.com), where he has posted more than 160 articles. Starting in 2007, he initiated the effort in California to obtain funding for HD research from the state’s

Tonight our incredible special guest is Karen E. Anderson, MD. She is an Associate Professor of Psychiatry & Neurology and the newly appointed Director of the Huntington Disease Care, Education and Research Center (HDCERC), a joint endeavor of Georgetown University Medical Center (GUMC) and MedStar Georgetown University Hospital.  As Director, she leads a multidisciplinary team devoted to HD care, the first in the DC Metro area. She previously founded the University of Maryland Huntington's Disease Clinic, and served as its director for 12 years.: Join us for an amazing discussion about: Types of behavioral interventions that work talk therapycognitive behavioral therapyredirectiondistractiondelaying (e.g. you cannot drive now, maybe in 6 months after we adjust your medications we can talk about this again) Common medications used to treat behavioral sx AntidepressantsAntianxietyAntipsychoticsSleep meds

Tuesday, November 12, 2013 Join us for an update on the HSG First-HD clinical trial with incredible special guests Jody Goldstein from Rochester and Greg Suter from the HNDC.   First-HD is a Phase III clinical research trial of an investigational drug called SD-809 Extended Release (ER) in persons who have a diagnosis of Huntington disease (HD). First-HD will look at how safe, tolerable and effective SD-809 ER is compared to placebo (inactive drug) in reducing chorea. First-HD will be enrolling participants across North America (United States and Canada) who have been diagnosed with HD and who have never taken tetrabenazine (Xenazine ®, Nitoman ®). Participants will be involved in this trial for approximately 4 months. For more information about First-HD you can contact the HSG directly: Toll-free number:  (800) 487-7671  (North America) OR email: [email protected] Visit: www.ClinicalTrials.gov

Pre-Recorded 9-17-13 Our incredible special guest is Dr. Mary Edmondson, Psychiatry from Duke University HD Clinic and HD Reach. Hear about the HSG Symposium set for November 7-8-9 in North Carolina.  

"Help4HD - The HD View: Celebrating the Advocates" Tuesday, October 22, 2013 is the premier of our new component of Help4HD Programming - "Help4HD - The HD View: Celebrating the Advocates."  It is so important that we take the time to acknowledge and celebrate individuals within our community who advocate for Huntington's disease! We are proud to have Kris Coasthunter King from Sheffield, England with us!  Kris is an amazing advocate for Huntington's disease and is here tonight to share his story and connection with HD.  Kris is an incredible athlete and in July 2014 has a plan to push his body to the limit, all to raise awareness and money for Huntington's disease. Stay tuned for a great show!

Tuesday, September 15, 2013 It's time for The HD View Ask Dr. Goodman Show!  Tonight we are going to be talking about substance abuse in Huntington's disease. Dr Goodman writes articles each month for Help 4 HD - The HD View to discuss on the Ask Dr. Goodman Show. Find Dr. Goomans new article: http://bit.ly/1hR4zTp

PRE-RECORDED   - First-HD is a Phase III clinical research trial of an investigational drug called SD-809 Extended Release (ER) in persons who have a diagnosis of Huntington disease (HD). First-HD will be enrolling participants across North America (United States and Canada) who have been diagnosed with HD and who have never taken tetrabenazine (Xenazine ®, Nitoman ®). Participants will be involved in this trial for approximately 4 months. Tonight listen to our special guests Dr. Samuel Frank - Associate Professor of Neurology and co-Director of Neurology Resident Education at Boston University and is involved with many HSG studies and trials, and David Stamler - Chief Medical Officer at Auspex Pharmaceuticals.  Help 4 HD International Inc. is thrilled to be working with Auspex and HSG as their premiere communications partner.

Tuesday, October 1, 2013 Dr. Peg Nopoulos, professor in Psychiatry, Pediatrics and Neurology at the University of Iowa Hospitals and Clinics will be our incredible special guest tonight.  She will be talking about Kids HD and Kids JHD and why the two studies are different. She will have returned from World Congress for HD with some very interesting information for us. Tune in for a very special update from our amazing, incredible Dr. Peg Nopoulos. Visit: www.kids-hd.psychiatry.uiowa.edu Facebook: https://www.facebook.com/KidsHd

Pre-recorded Tonight our incredible special guest is Dr. Ira Shoulson founder of the Parkinson Study Group and the Huntington Study Group. Dr. Shoulson is Professor of Neurology, Pharmacology and Human Science and Director of the Program for Regulatory Science and Medicine (PRSM) at Georgetown University.

Dr. Mary Edmondson, MD, Psychiatry from Duke University HD Clinic and HD Reach is back with us tonight.  HD Reach is a non-profit organization dedicated to providing access to care, education, and social assistance to patients and families affected by Huntington’s disease in North Carolina.  She will be hosting a symposium in November titled: “Neurodegenerative Disorders: The example of Huntington’s disease”. We will be speaking with her about some very important insights to care and clinical trials and her Pilot Project to increase awareness of Huntington’s disease.  She has developed a very comprehensive multi-disciplinary system to foster an approach for living well with Huntington’s disease. Visit: www.hdreach.org

Tuesday, September 3, 2013 Tonight we will be discussing obsessive compulsive behaviors in Huntington's disease. Read the article: Obsessive Compulsive Behaviors and Huntington's Disease http://hddrugworks.org/index.php?option=com_content&task=view&id=325&Itemid=30 Obsessive compulsive behaviors (OCBs) occur frequently in Huntington's disease (HD) and can cause great distress. These behavior symptoms are often hard for patients and families to describe, and doctors often do not routinely ask about or treat them.  It is important for you to recognize OCB symptoms and learn about treatment, because, though it is estimated that as many as 50% of HD patients experience these symptoms, a study of European HD specialty centers found that fewer than 2% were prescribed OCB-specific medications.  This is unfortunate because OCB treatment can make a big difference in the quality of life for both HD individuals and care-partners. Though there has been little research done on this symptom in HD, there is