Help 4 Hd Live!

TUESDAY, JUNE 17, 2014 Our incredible special guest is Claudia Testa, MD, PhD, Associate Professor of Neurology, and Associate Director of Clinical Research and medical director of the new VCU Parkinson's and Movement Disorders Center. The Center aims to integrate research, clinical care, and education and outreach missions in an interdisciplinary collaborative approach to making a difference in movement disorders. Dr. Testa moved to VCU in 2011, where she is excited to lead a new Huntington disease program. We will be discuss her career of care and research. Read more... After completing her MD and PhD degrees, Dr. Testa returned to Boston for internship at Beth Israel Hospital, then neurology residency in the Partners program at Massachusetts General Hospital and Brigham and Women's Hospital, where she was a chief resident her final year. She moved to Emory University for a movement disorders fellowship and basic research with Dr. Timothy Greenamyre. The HDSA Center of Excellence for Huntington Disease a

Happy Tuesday everyone! Tonight we are going to get an update on the HSG Clinical Trial for Huntington's disease called First-HD and ARC-HD. Our incredible special guests are: Samuel Frank, MD – First-HD and ARC-HD PI Claudia Testa, MD, PhD – First-HD and ARC-HD co-PI David Stamler, MD – CMO Auspex Pharmaceuticals Sarah Janicki, MD, MPH – Site Investigator, Columbia for First-HD We will be discussing the changes to the First-HD protocol with more sites added to help increase participation. We will also be talking with a site investigator, coordinator, and caregiver to get their perspective on how to make clinical trials a more positive experience for everyone.

PreRecorded 2-11-2014 Our incredible special guest: Dr. Vicki Wheelock, UC Davis Department of Neurology: Clinical Professor, Director Neurology Residency Program, Director Huntington’s Disease Clinic, Site Investigator, Huntington Study Group and Co-director, Northern California Kaiser Pallidotomy Program. Vicki Wheelock is a neurologist with special interests in pallidotomy (neurosurgical procedure), Parkinson’s disease and Huntington’s disease. Tonight we are going to be talking about PRE-CELL an observational study being conducted at UC Davis Neurology in Sacramento, CA.

Tonight our incredible special guest is: Suzanne Pontow, PhD, is a cell biologist focusing her research on neonatal stem cells at the Institute for Regenerative Cures within the UC Davis Health System in Sacramento.  Dr. Pontow received her BS in General Sciences from University of Iowa in 1985, and her PhD in Cell and Molecular Biology from Washington University School of Medicine in 1995. After 11 years studying how HIV infects cells, Dr. Pontow joined the laboratory of Jan Nolta, PhD, Director of the Institute for Regenerative Cures. The move to UC Davis allowed Dr. Pontow to pursue an interest in the remarkable stem cells that are routinely discarded with the placenta and umbilical cord following birth. In 2010, Dr. Pontow and Jon Walker, CLS were named Co-directors of the Umbilical Cord Blood Collection Program for the state of California, which is administered from the UC Davis Health System

Tonight Dr. Goodman is back with us… we will be talking with her about the role we take as caregivers… the hazards and the rewards. Read her newest article “Caregiving: A Risky Profession?” posted on May 4th on www.hddrugworks.org. Direct Link to The Article: http://hddrugworks.org/index.php?option=com_content&task=view&id=335&Itemid=30 In this article she talks about “Caregiving for a person with later stage Huntington's disease is a loving long-term commitment that can bring rewarding fulfillment but sometimes may be hazardous to your health... She writes on, “What are the health risks of caregiving?  What can be done to give some relief for caregiver strain?” Inquiring minds want to know… especially me! Welcome back to your show Dr. Goodman…  Let's get our questions ready...

TUESDAY, MARCH 29, 2014 3:30 PM PST Our incredible special guests today are: Joan F. Schanck, MPA William Hinman, CFRE, MBA Kelly Milukas, RMF Commissioned Artist  Katie Jackson, VP, Help 4 HD International SUBJECT Tonight we have four amazing and incredible guests here to talk about Regenerative Medicine Foundations upcoming Conference and Gallery Opening event which will be held at the Claremont Hotel in Berkeley, CA (May 5-7). We have Joan Schank, MPA, Academic Research Program office at Wake Forest Institute for Regenerative Medicine and Director of Education for the Regenerative Medicine Foundation. We have Bill Hinman, CFRE, MBA and Executive Director of the National Regenerative Medicine Foundation. Its mission is to encourage and promote unbiased efforts which accelerate the discovery and development of new regenerative medicine therapies for patients. Then we have Kelly Milukas, from Tiverton, RI, an amazing and talented award winning, multimedia, modern fine artist. She has been commissioned

PRE-RECORDED TUESDAY, July 9, 2013 Tonight our incredible special guest is Emily Fisher, MSc Medical Genetics, Centre for Molecular Medicine and Therapeutics at the University of British Columbia. In 2012, Emily Fisher completed her Master's degree in science specializing in Medical Genetics at the University of British Columbia. Emily's thesis project focused on the epidemiology of HD. This is very important work and we are going to find out what that means to us. Her study was conducted in British Columbia, Canada, and provided much needed information required in order to inform community-specific service needs and to plan appropriately for clinical trials and distribution of upcoming therapies. Tune in for a very informative program.

Chris Furbee and Matt Austin are here with us to talk about their recently finished independent films about their lives and perspectives living with Huntington's disease. Robert Rippberger produced and finished Matt Austin's film "Breaking the Cycle" and is now promoting both films as a double feature. Chris Furbee's film is titled "Huntington's Dance".

Tonight our incredible special guest is Margaret D’Aiuto Martarano de Gallardo. Born in California she becomes a nurse, meets and marries her husband Dr. Luis Gallardo Ayala, and moves to Mexico. She has seven children and at the age of 61, her husband is given the news that he might have HD and he passes in 1992. We are priviledged to interview this amazing woman of 90 years young about her trials and triumps over Huntington's disease and her life of love and commitment to help those who are suffering from HD. She is the Director of Asociación Mexicana de la Enfermedad de Huntington IAP in Mexico http://www.huntingtonmexico.org Hear her story on Help 4 HD Radio!

Tuesday, April 1, 2014 - It's time for the Ask Dr. Goodman Show! Tonight we will be discussing these articles with Dr. Goodman: What is Cysteine? And what does it have to do with Huntington's Disease? Posted March 27, 2014 by LaVonne Goodman, M.D. Raptor's Clinical Trial for Cysteamine in Huntington's: Cause for Optimism? Posted March 1, 2014 by LaVonne Goodman, M.D. Call into the show, ask Dr. Goodman your questions. Call in numbers 310-982-4227 or 877-497-4103 toll free!  

Wednesday, March 25, 2014 Tonight's incredible special guest is Dr. Albert Yu from Omeros here to talk about their Phase II clinical trial with OMS824 a PDE10 inhibitor for Huntington's disease. Phase II is for tolerability, safety and pharmacokinetics. Omeros is looking for 120 patients with Huntington's disease who will be randomized to receive placebo or one of three doses of OMS824 for the treatment of cognitive impairment. Tune in to an amazing show with Dr. Yu! Visit: http://www.omeros.com/ 

Tuesday, March 11, 2014 Our incredible special guest today is Dr. Ellen Feigal from CIRM. Tune in for an update from California Institute for Regenerative Medicine.

Pre-recorded We are talking about body discomfort in Huntington's disease. Like my sweet Jimbo, many of our HD and JHD individuals suffer from body pain. We must study this in order to find treatments and therapies. Listen to Dr. Goodman speak about new studies concerning this horrific conditon in HD.

Pre-recorded Dr. Deverman from Cal Tech is offering our listeners a series of educational shows outlining gene therapy and what science is happening right now for Huntington's disease. Tune in for Part 1 of Gene Therapy 101...  

MONDAY, February 17, 2014 Dr. Mary Edmondson is back! We love her wisdom and care of our Huntington's families in North Carolina. She is working on a model Family Education Program and we will get to hear all about that today. Tune in for some amazing information from our incredible special guest. Find Dr. Edmondson at: http://hdreach.org/  

TUESDAY, February 11, 2014 Special incredible guests tonight are Dr. Vicki Wheelock and Teresa Tempkin RNC, MSN, ANP from UC Davis HD Clinic. Tonight's topic is PRE-CELL, an observational study and precurser to HD-CELL. For more information about PRE-CELL visit clinicaltrials.gov http://clinicaltrials.gov/ct2/show/NCT01937923?term=Pre-Cell&rank=1  

It's time for Ask Dr. Goodman! Get your questions ready... Tonight we will be talking about antipsychotic medications for individuals suffering from symptoms of Huntington's disease. Read her latest article: http://hddrugworks.org/index.php?option=com_content&task=view&id=332&Itemid=30

Today’s incredible special guests are Ron Bartek, Co-Founder and President and Jen Farmer Executive Director, coordinator, of FARA /, The Friedreich's Ataxia Research Alliance a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as a catalyst, between the public and scientific community, to create worldwide exchanges of information that drive medical advances.

WEDNESDAY, January 29, 2014 - 1:30 pm PST/4:30 pm EST Gene Veritas aka Ken Serbin will be here to talk about the World Stem Cell Summit from December 2013.

SATURDAY, January 25, 2014 - 9:00 am PST/11:00 am Mexico City time Brenda Vega from Fundacion Huntington Mexico will be our incredible special guest. Co-Host Daniel Medina will be speaking to our Espanol compadres and translating en Ingles. Stay tuned...