Help 4 Hd Live!

TUESDAY, SEPT 22, 2015 ~ 2:00 PM PST/5:00 PM EST Tonight we have two of our most favorite incredible special guests, Dr. Karen Elta Anderson, Director at Georgetown/MedStar HD Clinic and Dr. Andrew Feigin, Director at the HD Center North Shore-LIJ Health System. Both are such esteemed medical professionals and well loved by the families whose lives they touch. They are super stars of Huntington’s disease care and clinical trial investigators. We will be talking about LEGATO-HD, the HSG/Teva clinical trial of Laquinimod. This will be a scripted program, but I want our listeners to know that if you have any questions about this program, please feel free to type it into the chatroom here on BlogTalkRadio or Facebook message your questions to me and we will try to get the answers for you.  Tune in for an amazing program to educate and inspire you. For more information about participating in LEGATO-HD study please talk to your physician or you may call the Huntington Study Group at 800-847-7671 or email at info@

TUESDAY, SEPTEMBER 15 - 3:30 pm PST/6:30 pm EST Happy Tuesday everyone!  This is Melissa Biliardi, your host. Our call in numbers are 310-982-4227 or 877-497-4103.  When you call in press “1” and we will cue you into the show.  Thank you 95 thousand listeners for tuning in to Help4HD Radio. Five years ago I never dreamed that we would be closing in on 100 thousand listeners and 220 episodes. I am so proud and happy to be able to introduce amazing guests to you on each show that we do. Tonight is no exception. We have an incredible, intelligent and brilliant research scientist with us Dr. Kyle Fink, who is working with Dr. Jan Nolta in her Lab at the UC Davis IRC. He is working on research to prepare the very first ever Juvenile Huntington’s Disease Research Initiative with stem cell. Tonight we get to meet Dr. Fink and learn all about his work in Jan’s Lab. All of our hopes and fears lie with getting research funded through all the phases of clinical trials and to the market for our loved one who are suffer

FRIDAY, AUGUST 14, 2015: 2:00 PM EST Tonight we have a very special show with Dr. Andrew Feigin, Professor of Neurology and Director of the Huntington’s Disease Center at North Shore University Hospital and the Director of the Laboratory of Experimental Therapeutics for Movement Disorders at The Feinstein Institute for Medical Research of the North Shore – LIJ Health System in Manhasset, NY.  Dr. Feigin has been involved in HD clinical research for 20 years; he participated in the Venezuela HD project for 10 years beginning in 1993. We will be talking about the new clinical trial called SIGNAL. Tune into a vey exciting new clinical trial using a new approach - a monoclonal antibody called VX15.

THURSDAY, AUGUST 13, 2015: 6:30 PM EST Tonight we have a very special show with Dr. Ottavio V. Vitolo a neuropsychiatrist and Medical Director at Pfizer Inc. He is the Research Project Lead and Global Clinical Lead for the PDE10 in Huntington’s disease program at Pfizer. We will be discussing the new clinical study for Huntington's disease called Amaryllis. Tune in and meet a incredible brillian man Dr. Vitolo.

Happy Tuesday everyone!  This is the Ask Dr. Goodman Show and this is Melissa Biliardi, your host. Tonight our call in numbers are 310-982-4227 or 877-497-4103.  When you call in press “1” and we will cue you into the show. Thank you 93,000 listeners for tuning in to Help4HD Radio. Tonight we are discussing the drug Pridopidine. Dr. Goodman writes in her recent article: Pridopidine and the Hope for HD Neuroprotection In a new laboratory study from Italy, investigators have reported a very exciting result for Huntington's (HD).  Pridopidine, the drug presently in clinical trial for HD was shown -- not just to treat motor symptoms -- but also to provide neuroprotective benefit in a genetic mouse model of Huntington's. Read her article: http://hddrugworks.org/index.php?option=com_content&task=view&id=353&Itemid=30

Tuesday, June 30, 2015 3:30 pm PST/6:30 pm EST HDSA's Senior Director, Mission and Scientific Affairs, Dr. George Yohrling will be with us to share information about HDSA's  newly launched HDTrialFinder.org site. Together with HD Drug Works, HD Buzz, HSG, Huntington Society of Canada, and CHDI, Help 4 HD International is proud to partner in this effort to bring education about clinical trials together in one place. It provides precise and strategic information to our HD community about clinical trials that they may qualify for in their area. This collaborative effort is a first to bring all the clinical trial information together on one site, a database where information may be called up according to the inquirer's specific location and criteria. Go to: http://hdtrialfinder.org/ and register. Other topics of discussion: HDSA's 30th ConventionFDA PDUFA Meeting in September Tune in for a very special show with Dr. George Yohrling!

TUESDAY JUNE 2, 2015 - 3:30 pm PST Tonight we have a special show with two of Dr. Goodman’s incredible friends who are working directly with the homeless community in Washington State.  As many of you know Huntington’s disease sufferers sometimes end up in homeless situations.  Well, tonight we are going to meet Rev. Jim Bridges who does amazing work to help the homeless and we also get to hear from our super incredible Elizabeth Valenzuela again.  You may remember when she was on the show a year and a half ago when we talked about how she found a man struggling with HD and living in very sad conditions.  We have lots to talk about tonight! Let's get your questions ready for the experts on the state of homlessness.

Let's talk about caregiving!  Tune in today as we talk with Dr. Goodman about the challenges of caregiving for our HD and JHD loved ones.  Many of us are dealing with so much loss before the loss and after the loss of our loved ones.  If you are a caregiver you know what I'm talking about. One person states, "On top of the personal stress, there is also the stress of maintaining one's home: replacing broken glass, punched doors, cleaning the furniture, not having friends over as often which lends into losing many people. Many of these "things," which is actually part of one's home community, go to pot so to speak. Even the outside of the home becomes shabby....all this lends to the stress of a caregiver." In trying to identify how many of us are caregiving, I found that it's really impossible to know the numbers because of the level of stress that the caregiver is under 24/7.  This stress does not let up; it only intensifies. Those of us who are under this kind of stress don't have time to answer surveys or

Tuesday, April 14 - 3:30 pm The amazing, incredible, fantastic Jimmy Pollard is going to be with us tonight.  Jimmy has quite a speaking schedule these days and is on a mission to educate about clinical trials, namely Enroll HD (http://www.enroll-hd.org/), which is a worldwide observational study for Huntington’s disease families. This study will monitor how the disease appears and changes over time in different people, and is open to people who either have HD or are at-risk. Monitoring people over time in a real-world setting contributes to scientific knowledge. The study is designed to accelerate the discovery and development of new therapeutics for HD. Jimmy says, "No volunteers for studies, no more advances in the quest for a cure!" Enroll-HD Also find Jimmy's book on Lulu: "Hurry Up and Wait: A Cognitive Care Companion" (http://bit.ly/1DCUJmO) This book will give you a set of exercises to simulate the cognitive difficulties faced by those with HD, a collection of tips to accommodate them in your home

What is Laqunimod?  Laquinimod is an experimental drug from TEVA Pharmaceuticals that has already been tested in previous clinical trials in several diseases including Multiple Sclerosis (MS).  This drug is thought to affect (or modulate) immune activity by shifting an injurious inflammatory situation to one that is more protective and anti-inflammatory. There is also evidence from various clinical trials that laquinimod may delay progression of disability in MS, and that it reduces brain atrophy as measured by MRI brain scans.  By reducing brain atrophy, this drug may have neuroprotective effects [Varrin-Doyer 2014]. This drug can trigger  protective neuron factors like BDNF (as measured in blood of MS clinical trial participants) that supports the health of neurons.   We will be talking about LEGATO-HD clinical research trial that will test the safety of Laquinimod.

TUESDAY, MARCH 31 - 1:00 PM PST Tonight our incredible special guest is Patricia Ortiz, Vice President of Patient Liaison at Rare Diseases Patients First! a nonprofit organization that focuses on educating patients with rare diseases about the clinical trial and drug development processes. Patricia Ortiz began her professional career working at the National Metrology Institute in Germany and has expertise in many different engineering disciplines including precision engineering, nuclear physics, and quantum optics. Later she shifted her focus to Biomedical Engineering. Upon completing her Master’s Degree in Biomedical Engineering at the University of Applied Science in Luebeck, Germany she has worked for large medical device and biotech companies as well as small startups, leading cross functional team in medical software and diagnostic instrument development within the US and overseas. Rare Diseases Patients First! is a nonprofit organization that was founded by Dr. Lorna Speid in 2014 and focused on educ

TUESDAY, MARCH 17, 2015 3:30 pm PST/5:30 pm CST Tonight our incredible special guests are Dr. Peg Nopoulos, Sonia Slevinski and Jane Kerr from the University of Iowa.  We will be talking about the clinical study called Kids-HD/Kids-JHD.  This study is sponsored by CHDI and is an ongoing study to help determine what is the best care protocol for the care and assessment of JHD children.  Tune in and bring your questions. Call into the show on these two numbers: 310-982-4227 or 877-497-4103. Talk to you soon! For more informationn about Kids-HD/Kids- JHD visit their website: http://kids-hd.psychiatry.uiowa.edu/faqs 

Tuesday, March 10, 2015 3:30 pm PST/5:30 pm CST Tonight our incredible special guest is Margaret Tollerton who is the Statewide Outreach Director for the Missouri Cures Education Foundation. She brings with her three decades of marketing, communications and nonprofit experience. A graduate of the University of Missouri, her personal and professional life has been dedicated to improving the lives of others through responsible health care, education and equality. A proud mother of three, Ms. Tollerton earned her Black Belt at age 50 and is a licensed Reiki Master. Her great-grandparents, grandparents and parents all died from diseases we now seek support to cure. Missouri Cures Education Foundation is a statewide non-profit public education and advocacy alliance working to promote and protect medical advances to improve the health of Missourians and stimulate the economy in the state.

ON HELP4HD RADIO Tuesday, March 3, 3:30 pm PST/6:30 pm EST Dr. Goodman writes about the Pride-HD (Pridopidine) study in her recent article... "PRIDE-HD: Why We Should Bother" Recruitment is not going well for PRIDE-HD, an important clinical trial now enrolling for Huntington's disease (HD). Why is this?  Some think "why bother", particularly when testing a drug they may perceive as a failure in earlier trials. For some others, the trials may seem to too hard, too long, or not permit other drugs they are taking.  Still others are waiting for the gene therapy magic bullet they believe is just around the corner... Help4HD says, "Because we don't know until we try." Tune in to the show and let's talk about it!

Tonight, we have two very incredible special guests here with us to share their story and mission to raise research dollars to find the cure for Huntington’ disease. Trey Gray (touring drummer in Nashville) and Doug Michael (recording engineer), best friends since their teenage years; compadres in music, and now connected forever in the life battle that Trey must endure with Huntington’s disease. Both are determined to fund research and dedicated to raising awareness about Huntington’s disease. They are raising $55,000 that will be donated directly to "The Trey Gray Fund for Huntington's Disease" at the Vanderbilt University research center for HD. Doug will be riding a bicycle 3,500 miles from Los Angeles to New York to raise awareness and money for this very important cause. Trey will be following Doug in the chase vehicle and at times he will be riding along. Tune in on Thursday to hear all about this amazing fundraising campaign for Huntington's disease awareness. CAMPAIGN LINK http://igg.me/at/Huntingt

TUESDAY, FEBRUARY 3, 2015 - 3:30 PM PST/6:30 PM EST Tonight Dr. Goodman will be talking about aggression in Huntington’s disease. A recent article reports that aggression is common in individuals with Huntington's disease. Authors report rates of aggressive behaviors between 22% (for clinic patients) and 66% (for hospitalized patients) among individuals with HD. What do they mean by aggression, and how should we interpret these numbers? It is important to remember that aggression (as defined in this article) and violence are NOT the same thing. However, the most important thing to learn is not how often it occurs, but how we can understand, cope with and treat aggressive behaviors in HD. Article direct link: http://hddrugworks.org/index.php?option=com_content&task=view&id=349&Itemid=30 Read Dr. Goodman’s articles at: www.HDDrugWorks.org

TUESDAY, JANYARY 27, 2015 - 11:00 am PST/2:00 pm EST Tonight our incredible special guest is Attorney Esther Wang, a very special person to our Huntington's community in the Riverside County, California area and someone who has been providing quality legal services since 1991. Ms. Wang is an accredited attorney by the Department of Veterans Affairs to represent veterans and their family members. She is approved by the California Board of Behavioral Sciences and the Board of Nursing as a continuing education provider and is frequently invited to teach continuing legal and medical seminars in hospitals, skilled nursing facilities, and assisted living communities county-wide. Ms. Wang is here with us tonight to talk specifically about government or public benefits: qualification requirements for Medicaid, VA benefits, Social Security, planning for children with JHD, and the special needs trust. This is very important information for our entire community, so get your questions ready! We will have a Q&A sess

Tuesday, January 12, 2015 - 1:30 pm PST/3:30 pm CST/4:30 pm EST Dr. Victor Sung is Assistant Professor, Department of Neurology, Division of Movement Disorders at the University of Alabama at Birmingham. This afternoon we will talk about his HD clinic at UAB and the work he is doing with clinical trials.  Tune in to a very interesting and educational show.

Tuesday, January 6, 2015 Happy New Year! Tonight Ask Dr. Goodman about deciphering clinical trial data. We just happen to have some very exciting positive topline results to talk about from Auspex Pharmaceuticals Phase 3 registration trial of SD-809 for chorea associated with Huntington's disease. Read the Auspex press release here: LINK Get your questions ready and tune into the show. Call 877-497-4103 or 310-982-4227 press "1" and we will cue you into the show!  

Hello everyone and Happy Holidays to all. Tonight we are re-running Celebrating The Advocates.These four amazine women who are JHD/HD advocates and caregivers deserve gold medals in my book. We wish to honor them and encourage them in this lifes journey. We all need to help and support eachother, especially at this time of year. Enjoy the show! Super incredible JHD/HD advocates tonigh: Roberta Brink Sharon Thomason Stacey Sargent Vicki Owen