Help 4 Hd Live!

Anticipatory Grief with Lauren and Sharon

Anne-Elizabeth shares her HD story

HD CAREGIVERS, WE NEED YOUR HELP! To prepare for a clinical trial of a drug that may reduce the disruptive aggressive behavior that some persons or patients with HD suffer from, we would like to interview about 25 caregivers who are parents, spouses, or adult children of patients who have aggressive outbursts. We are specifically interested in trying to build a list of words that can be used to describe these physically aggressive, acting out, or other threatening behaviors. The research is sponsored by Azevan Pharmaceuticals, Inc. The interviews will be conducted by Erin Koppel, who works at the Huntington's Disease Society of America Center of Excellence at Georgetown University. We will provide a special cell phone number that guarantees the privacy of the connection. The calls will be voice recorded and transcribed so that they can be reviewed more easily. The information that you provide will be stored in password-protected files at Georgetown University. You must be fluent in English an

Irina has worked in drug development for over 18 years, with a focus on translational medicine and early development in neuroscience, but also ophthalmology and immunology. She has gained experience with development of small molecules, biologics as well as nucleic acid therapeutics, in a number of global pharma and biotech organizations in the US and Europe. Before joining Triplet Therapeutics, Inc., she was VP of Translational Medicine and Development at Wave Life Sciences in Cambridge, MA, developing stereopure nucleic acid therapeutics for rare genetic diseases.   Irina has an MD from the Technical University, Munich (Germany), and a PhD in neurophysiology from the University of Edinburgh, UK. She trained in psychiatry and neurology at the Max Planck Institute of Psychiatry (in Munich), and is board certified in Germany.   She obtained her venia legendi at the Charite, Berlin University in 2004; she is a reviewer for the German Ministry of Research and member of two supervisory boards in Germany: 4SC A

Nessan Bermingham is founder and CEO of Triplet Therapeutics, Inc. He is a serial biotech entrepreneur and investor who has founded several companies including Triplet, Korro Bio and Intellia Therapeutics, “one of the top 10 biotech start-ups in 2014” and a “Fierce 15 biotech company,” taking the company from concept to IPO and large partnering deals with approximately 200 employees. He has nearly two decades of experience in Life Sciences startups and investments, including small molecules, biologics, medical devices, and diagnostics through venture, public, and secondary markets. As a venture partner at Atlas Venture and managing partner at Omega Funds, he successfully invested in and managed multiple investments across the United States and Europe. Currently he is also a venture partner at Atlas Venture and is Chair of the Board of Directors of F-star and Akrevia Therapeutics. He served as Intellia’s President and CEO from inception until December 2017. Previously he was an independent advisory board membe

Kirsten and COVID19

Matt Kapusta from UniQure joins us to provide an update.

Join us as we talk with Kay and her best friend Taylor who has HD

Huntington PARAGUAY

Anne-Elizabeth

Ashley Fajardo

It's not always HD

Katie Simos is a Regional Sales Manager with AFLAC and longtime friend of Lauren Holder.  *Please note: This information is for educational purposes only, not to sell you anything. However, if you would like to get more information about how AFLAC policies could benefit your family with HD, please reach out to Lauren Holder at [email protected] 

Paul talks to us about being his wife's caregiver

Maurice Zauderer, Ph.D. has served as Vaccinex’s President and Chief Executive Officer and a member of the board of directors since the company’s inception in April 2001. Prior to founding Vaccinex, Dr. Zauderer was an Associate Professor at the University of Rochester and has also held senior faculty positions at Columbia University. During his academic career, Dr. Zauderer held the position of visiting scientist at the Laboratory of Cell Biology, the Ontario Cancer Institute and the National Cancer Institute. Dr. Zauderer received a B.S. in Physics from Yeshiva University and a Ph.D. in Cell Biology from the Massachusetts Institute of Technology.

For more information, please visit https://www.asha.org/

Becky Crumpler talks about her daughter being in a facility during COVID-19

ER Visits during COVID-19

Because we are all concerned about COVID-19 right now, we are re-airing our show with Dr. Wheelock and Lisa Mooney. Dr. Vicki Wheelock is a neurologist and the director of the HDSA Center of Excellence at UC Davis Health. The mission of the HD clinic at UC Davis is to provide expert and compassionate care to people and families affected by HD, to provide outreach and education to families and health care professionals, and to advance HD research. Dr. Wheelock has extensive experience in HD education and research, and has been an investigator for HD observational studies and clinical trials since 1997. Lisa Mooney is the licensed clinical social worker for the HDSA Center of Excellence, UC Davis, and Northern California HDSA Chapter. HD patients, family members, and community providers can call Lisa regarding HD resources, community resources and benefits, information and education, and long term care planning. 

Lauren Holder and COVID19